wipala ! I was not able to make it to P'town for the hoops - it sounded awesome though ... a great plus for the Portsmouth area during the summer months once again ... thank you for your thoughts my friend! ... difficult summer this year for me BUT I am hanging in there as best I can, I have a few napkin stats to share:
* finishing up week number 6 of chemo this Monday night (chemo drug Zelboraf, 960mg taken every 12 hours ... scheduled thru at least mid October)
* Met with my oncologist at the James on July 2nd - she went ballistic when I told her I was trying to lift light weights for my joints ugghhh told me it was the worst thing I could be doing - putting strain on my joints ... so much for fighting pain, trying to take control ... she suggested swimming, walking ... the Baymont Inn here in Logan is allowing me to use their pool and hot tub ( as long as I have a doc's prescription - got it) ... have used the facilities 4 days this week - awesome! - the joint pain seems to be relatively nonexistent ... walking is soooo much better, balance better ... although I feel like I am entering the movie set for the Cocoon when I go - it is definitely helping ...
* with the pain on the back burner for now, my battle seems to be with "fatigue" ... I am usually a very active person, indoors/outdoors ... my energy levels are way below my norm ... coupled with the hypersensitivity to the sun the ability to get out and do anything is not happening ...
* Not to be one to be 'defeated" easily - I picked up one of the 5-hour Energy thingys - never tried the stuff before BUT today - I'm game ... only 6 mg of Caffeine , mostly vitamins ... just tipped it back a few minutes ago - we'll see how it works ...
* New side effects - I have had a "2nd head" start growing under my right eye lid, the dermatologist gave me antibiotics to see if that reduces the size of it - if not I will be having it removed and biopsied this Thursday in Athens OR if I leave it my "committee of one will have to expand to a committee of 2!" ...
* My weight is down about 12 lbs
* Hair loss - who can tell when I had not so much to start with LOL ...
... all in all I am coping as best I can ... I have a routine oncology visit August 1st - EKG/blood draw/see how I'm handling the meds ...it will be at this appointment at the James when we will set a date for the first week in September for a CT Scan ... the CT Scan will tell us if the cancer has continued to spread OR IF the Zelboraf has been effective in slowing down the spread/shrinking the size of the tumors/ and BEST case scenario - possibly eliminating the tumors all together ...
...I have heard from many of you via DM or cards - thank you all ... I can't overemphasize what the support you have shown me and my family has meant - my heart swells up just typing that - you folks are so amazing ... I have never had any doubts about beating this thing - even when given the statistical odds by the docs that say otherwise - too much to live for, too many lives to touch yet, so much basketball to see, so much harassment of
93bulldog yet to be done !!!
Thank you all, you're the best ...
